Friday, July 1, 2011

And the journey continues.

May 27th we drove to Dallas to Children's Medical for an appointment for Jeremiah with a GI doctor, Dr. Ramirez. Whom we absolutely love by the way.  Our appointment lasted about an hour and we came home with a game plan that included prevacid, a nutritional supplement, speech therapy, and an Esophagogastroduodenoscopy (EGD) with a biopsy. On June 23rd, we went to Dallas again for his EGD and biopsy. Every thing about the appointment went amazing. We got to Children's at 6:30am for our pre-op. He was in a pre-op room by 7am and we were able to meet and talk with everyone who was going to be involved. It made me feel so much better about the whole thing! At 8:45 they gave him some 'happy drug' and wheeled him away from us to be put under and have the EGD done. At 9:15 we met with the doctor and at 9:45 we were able to comfort our screaming child who was very confused about where he was and how he felt. Besides a sore throat and a little throwing up blood, Jer did great. That afternoon he was back to his silly self.

The doctor told us that everything looked normal during the procedure, but they did 12 biopsies: 4 from the esophagus, 4 from the stomach and 4 from the small intestine. The doctor herself called me this morning (June 29) to talk about the results. Basically, the biopsies showed that he had allergies. Lots of them. We have been withholding milk and soy for a little over a month now (see last post). But not worrying about anything else. So, we are going back to the allergist to get tested for more things but for now we are withholding milk, soy, eggs, peanuts, tree nuts, fish, and maybe wheat. She didn't see anything that indicated Celiac's disease. She was going to call the allergist we've seen here in Tyler.  She also increased the supplement he is on, called Peptamen Jr.

Today I feel a little defeated.  I know that we will be fine and I will be able to provide my child with the nutrients and food he needs, but it won't be easy all the time.  And it certainly won't be cheap. I think that Kelle Hampton (kellehampton.com) sums up my feelings best, "I love them so deeply, so fiercely, so wholly that the thought of them not being okay is more painful than that of my own well-being."

It's been a hard week but I am confident that God is good. And we will know joy and peace.

Entire family together for Chris' graduation

Jeremiah meeting his cousin Micah.

Learning to play cornhole with Uncle John.

Enjoy a fire with Papaw.

The Lovetts came to visit and Jeremiah loved Reese.

We made some playdough one day and Jer loved it!
Have a good weekend!